Authors: Christelle Nguyen; Tatiana Sofia Rodriguez-Reyna; Carolyn Ells; Nora Østbø; Isabelle Marie; Cornelia H. M. van den Ende; Linda Kwakkenbos; Amy Gietzen; Nassim Ait Abdallah; Maureen Sauve; Niall Jones; Marie Hudson; Suzanne Kafaja; Karen Gottesman; Michelle Richard; Julie Cumin; Alena Ikic; Claire Fedoruk; Sabine Berthier; Christian Agard; Genevieve Gyger; Alexis Régent; Kimberly A. Turner; Alexander W. Levis; Lorinda Chung; Maureen D. Mayes; Brooke Levis; Nancy Maltez; Marion Casadevall; Lyne Bissonnette; Nicole Culos-Reed; Julia Nordlund; Ariane L. Herrick; James V. Dunne; Maria Martin; Marie-Eve Carrier; Angelica Bourgeault; Laura Dyas; Janet E. Pope; Luc Mouthon; Sophie Roux; Virginia D. Steen; Sébastien Rivière; Brigitte Granel-Rey; Nader Khalidi; Tracy M. Frech; Ariel Masetto; Warren R. Nielson; Joanne Manning; Perrine Smets; Kim Fligelstone; Pamela Piotrowski; Patricia Carreira; Bertrand Dunogue; John Varga; Alexandra Albert; Shervin Assassi; Marc André; Joep Welling; Paul R. Fortin; François Maurier; Robert Riggs; Maria E. Suarez-Almazor; Esther Rodriguez; Pearce G. Wilcox; Shadi Gholizadeh; Ward van Breda; Elana J. Bernstein; Maria Gagarine; Sabrina Hoa; Jessica K. Gordon; Sheila Melchor; Dan Bilsker; Karen Nielsen; Catarina Leite; Andrea Carboni Jiménez; Ghassan El-Baalbaki; Evelyn Sutton; François Rannou; Andrea Benedetti; Maggie Larché; Marie-Nicole Discepola; Alessandra Bruns; Anne A. Schouffoer; Thierry Martin; Catherine Fortune; Amanda Wurz; Chase Correia; Carter Thorne; Hélène Maillard; Dominique Farge-Bancel; Daphna Harel; Christopher P. Denton; Vanessa L. Malcarne; Vincent Poindron; David Launay; Vincent Sobanski; Lydia Tao; Isabelle Boutron; David Robinson; Arsene Mekinian; Mara Cañedo Ayala; Benjamin Crichi; Regina Fare; Robert Spiera; Brett D. Thombs; Eric Hachulla; Susan J. Bartlett; Geneviève Guillot; Robyn T. Domsic; Marc Lambert; Louis Olagne; Sindhu R. Johnson; Richard S. Henry; Susanna Proudman; Mandana Nikpour; Benjamin Chaigne; Lisa R. Jewett; Monique Hinchcliff

Venue: Trials

Type: Publication

Abstract: Abstract Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program using the cohort multiple randomized controlled trial (RCT) design. Due to low intervention offer uptake, we will conduct a new feasibility trial with progression to full-scale trial, using a two-arm parallel, partially nested RCT design. The SPIN-SELF Program has also ... (read more)

DOI: 10.14288/1.0404414